I have one more complete cycle of chemo over the next 4 weeks and one more infusion of Zoldronate to strengthen my bones...... It looks promising that I might manage a remission in March.... Things could be looking rosy ... I am not going to believe it until it happens...
One thing that I have suffered with this past week has been agonising bone pain in my left shoulder. The consultant is going to arrange for me to have radiotherapy directed at the point of pain which will reduce the pain.
Even when remission is achieved pain in the bones can continue. This can happen because bone damage can continue to cause symptoms even though the myeloma is in remission. The consultant has explained to me that I will have some level of pain for the rest of my life however long that is......
The consultant was surprised that I have managed to ride my bike occasionally because even if I feel good I still have to overcome the bone pain...... Having always been keen on endurance cycling events I am used to managing certain levels of pain and I am sure that helps me control the pain with my bones when riding. I am planning to do a multi day ride in June if the remission materialises..... It could be rosy.......
Most of my thoughts now are about riding my bike and cycling in general. Next week I will share some of these thoughts with you ..
8 comments:
That good news Trevor and things are going in the right direction. I hope that they can do something to ease the bone pain as I guess there is a level at which it becomes unbearable. I have an appointment with the consultant on Wednesday about the hernia so hopefully it can be sorted soon.
Enjoy the planning for your June ride.
All the best.
Keeping everything crossed for you Trevor positive signs👍
@Dave
Yes the bone pain is one of the things that marks this form of cancer out as one of the most painful. These are times when it is beyond what I can deal with even with the morphine .
Best of luck for Wednesday I will be thinking of you and as you say let's hope the hernia can be sorted soon....
Take care....
@Frank Kernow
Thanks Frank the signs do seem to be on for a full remission.....
Great to hear that things are improving and that you have been out on the bike. It will great if you can get to the ride and I hope the radiotherapy helps your shoulder.
@Peter
Thanks for the comment Peter it helps stop me feeling too isolated..... I haven't actually been 'out' on my bike yet. My bike riding has been restricted to 5 mins here and there of riding on the turbo. At the moment riding my new bike outdoors remains a bit of a dream. Due to my non existent immune system I still have to isolate even though Boris has declared the pandemic is no more.....
Long time no read Trevor, I'm glad things are turning in the right direction. Sending you my very best good vibes :)
@Rantwick
Thanks for the comments and catching up on the way things are currently. I appreciate you sending out your very best good vibes. I need all the support I can get and I really believe it all helps.....
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