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Now retired but busy still living..

Saturday 20 November 2021

More pain and empty pitches


Another difficult week with a little less fatigue but a lot more pain. The problem with the pain is that it moves around my body and needs morphine to control it. Taking morphine means that I then seem to spend hours and hours sleeping just nodding off at any time. 

One thing that happened during the week that was a plus is the flu jab that I was given. Because of my chemotherapy treatment I can only be given extra jabs between chemo cycles. 

I am currently on my first week off chemo and that's why they were able to give me the flu jab.... During this upcoming week they are hoping to give me my third Covid jab..... Following that I will be starting another cycle of chemotherapy. 

The images above show parts of our site... Top one is the route to the facilities... A bit like walking down a narrow maze with evergreen hedge on the left. The wind won't find you down there.... The other images show a couple of the empty pitches of which we have quite a few at this time of year....

Saturday 13 November 2021

It's a long time to wait......


A very similar week to the previous one. Although the fatigue has improved I am still not back to any form of normal. 

Yesterday I had a 1430hrs chemotherapy appointment. When we got there I was told that they were running an hour and a half late. We decided we would go down to the hospital cafe and waste an hour there.

 Two coffees and two cakes and eleven pound sterling lighter we got back up to the outer ward waiting area with about half an hour before the promised delayed time. At 1600hrs I wandered into the inner waiting area and the girl in reception told me to take a seat in a small waiting area just opposite reception.

 And there I waited until 1820hrs. A couple of times I reminded them that I was still there and hadn't been seen but it was a long time to wait. When you are already very fatigued and pretty ill three and three quarter hours is a long time to wait to receive treatment that is going to make you feel even more fatigued and even more ill...... 

All the staff on the ward are working flat out but they are currently operating with at least six members of staff short. Apparently more staff have been recruited but it takes over six months for them to be fully trained..... It looks like there won't be an improvement for sometime to come... 

 The campsite was busy during the first few weeks of October but it has now gone into winter mode with just the odd one or two visitors every now and again. They are usually campervan campers they stay for a couple of nights and then they are off again......

 90+ years old Mike is preparing to head off down to Spain for three months but unlike previous years when he towed his small Hobby caravan down through France this year he is planning on taking the Ferry down to Northern Spain and save time and hassle. .... 

We are expecting Debbie and Mark to arrive back on site from Italy anytime soon. They always overwinter here because where their property is in Italy the winters are worse than here plus they have family in the area here.  

I now have a two week break from the Chemotherapy before it all starts over again....... 

Saturday 6 November 2021

A Week on and a Difference


A week further on and a major difference. 

Still suffering with some minor fatigue but on a different scale to last week. Still have a bit of a problem with my calcium levels but it is going in the right direction.

 The top image shows the infusion that I had yesterday. It's for a drug called a Bisphosphonate which helps strengthen my bones and reduce the pain. 
The exact one that I am taking is Zoledronic Acid. 
It is given as a drip into my hand shown in the next image. 

The infusion can bring on a mild flu like symptom and a feeling of nausea . Sometimes Bisphosphonate can cause damage to the jaw bone. This is called Osteonecrosis of the jaw. This is why I had to have dental treatment a few months ago so that my jaw was prepared for this possibility. 
Luckily I have avoided this so far.

 The next image is of the Future Inn Hotel on the outskirts of Plymouth. I have to visit there once a week for my weekly blood test. 
The NHS Phlebotomy service is based there currently and is a very quick and efficient service. 

This morning I received the latest report update on my current condition. The MRI scan I had on my thorax has confirmed that the lump on my sternum is consistent with Active Myeloma.
 There are also other Lesions in my Ribs and Vertebrae. 
They say that it is not surprising given that I was off treatment for a period of time whilst I was undergoing the Thyroidectomy. 
It is reassuring to note that this lump has improved since restarting treatment. 

I've still not managed to get out on the bike again this week although it was weather and not cancer holding me back. 
I have now set up the turbo again ready for the winter period so getting out on the new bike is not so crucial as I will have the option of riding the Turbo Tifosi. 

Just to finish off this week.....
 A couple of friends have told me that they are having problems posting comments here on the blog. I have checked it myself and all seems ok and those of you who left a comment this past week obviously didn't have a problem. If you do have difficulties let me know via my Google ID.... 

Six weeks off.

 The visit to see the Consultant went quite well really ...   My ' numbers' have started to creep up again so I am going to be given...